The most recommended books about HIV

This is an amazing book if you want to understand that disease isn’t just medical, it’s also cultural.

Contagious really describes how culture influences how we understand illness and how that affects treatment and care of individuals, including who we blame and how we understand risk.

People like to think of medicine and science as being detached and objective, but this book shows that simply isn’t true. 

I’m going to say right off the top that this book is not well written: it’s turgid and florid and hard to follow. But it’s also recent, unlike most of the books on my list, and it’s the first comprehensive accounting of PEPFAR, the extraordinary US intervention into the African pandemic.

It’s impossible to understand the huge shift in the dynamic of the pandemic without understanding how massively George Bush’s decision to support HIV treatment in Africa changed – well, everything – and Bass is the first writer to try to really dig into that story.

A big mistake in much radical analysis is to characterize problems in dualistic terms that externalize responsibility from Africa (Rodney, of course, is wide open to that critique). Thus, colonialism is not just irredeemably bad but simple to identify and directly related to white skin. The end of formal colonialism provided new targets in sometimes caricature form: black-skin-white-mask neocolonialism and neoliberalism, notably. Such things undoubtedly exist. However, Kenworthy’s brilliant, gob-smacking analysis of the unintended consequences of life-saving technologies reveals levels of complexity and complicity that belie easy dualisms. How does something that promises liberation from mass suffering and death (anti-retroviral drugs) become a machine to entrench corrupt elites and opportunistic NGOs, to sell cheap textiles in America, and to exploit poor women’s unremunerated care work? Read, weep, and lose your illusions about corporate social responsibility.

This is the behind-the-scenes account of the most-watched NCAA Final in television history, and the epic Celtic-Laker clashes of the 1980s. MacMullan had ultimate access and knows the game. In this work, she captures the voices of Magic and Larry throughout giving the reader primary source history on a golden time in the NBA. 

This book is exactly what the title promises, and a great place to start.

It’s written by a Swazi health economist who has worked on HIV in Africa for more than 30 years; I have learned a lot from Whiteside and his research over my years of covering this issue. The book looks at the biology and epidemiology of HIV, and also at all the ways it shapes societies.

Whiteside takes complicated concepts of population dynamics, sexual networking, AIDS, and geopolitical security and explains them briskly, clearly, concisely. His focus is the global AIDS epidemic, but his own work and the book are both deeply rooted in Africa.

Steinberg is one of South Africa’s great writers of narrative non-fiction; his work is oddly little known outside his home country and it was of huge value to me when I discovered it, not long after I moved to Johannesburg.

This book tracks the progress of a testing and treatment program in Lusikisiki, which had one of the highest HIV infection rates in the world. Part of the story is told through the eyes of a white doctor who expects that, once treatment is there, everyone will seek it out – and a young Black man named Sizwe, clever and successful, who shows all the reasons why HIV response is not as simple as opening up a clinic.

Steinberg’s book probes into some of the messier, less-well-understood dynamics that have driven the pandemic, and features voices rarely heard outside a community like Lusikisiki.

Though we often think that positive change is inspired by charismatic leaders, NYT top gun journalist Tina Rosenberg takes us to a very different world, where real positive change is not driven by role models, but the peers. From iconic student-led revolution which has spread like wildfire from campuses to cities and villages in 90s Serbia, through removing the stigma from HIV positive people all the way to amazing process in which smoking has become “non cool” instead of “socially acceptable” this book explores the phenomena of “healing the community through peer pressure” especially among youngsters, and may serve as an amazing lighthouse to those seeking to mobilize-and get inspired by their own environment.

One of the best academic books written at convergence of the HIV/AIDS and COVID-19 pandemics is The Virus Touch.

Here, Bishnupriya Ghosh showcases how “epidemic media” inform how epidemics are understood and experienced—making this text so relevant right now. She looks at how media—images, numbers, and digital models—whether generated by scientists, artists, or activists enable us to see and understand viruses and bear witness to their effects in new ways.

What is unique about Ghosh’s scholarship is how looks to the environment to study health which illustrates the complex and tangled relationships between epidemics, humans, animals, and media. Ghosh’s rich examples, ranging from modelling viruses to reading test results to tracking infection rates and mortality numbers, ensure that Virus Touch speaks to diverse readers.

This book made me dizzy with love. This memoir is overflowing with love. Love of the self, love of language, romantic love, familial love, pet love, fear of love, unrequited love, tough love, tender love.

Perhaps most of all, I was taken with the way the author navigates the world so internally, a very solitary yet romantic pursuit of belonging. I kept catching myself leaning forward while reading, propelled through the nonlinear story of Stewart's life by the swelling emotions and incredible control of language.

I spent two weeks reading this book on repeat because the powerful, poetic prose kept inspiring me to write. If this book were a cake, I would eat it forthwith.

Marty Fink’s book is one of the best examples of recent and groundbreaking scholarship on HIV/AIDS.

Fink examines HIV/AIDS histories through critical disability studies discourse to show in a compelling and very readable way how queer and trans people in the 1980s and early 1990s came together to take care of each other when faced with stark and far-reaching state violence.

This book has deep contemporary relevance showing how multifaceted HIV care-giving narratives continue to inform how individuals and our wider society makes sense of gender, disability, and kinship.

Such work is essential in this political moment where we are seeing ever-more challenges to bodily self-determination, for women, queer and, especially for trans people.