Both of my parents were diagnosed with Alzheimer’s on the same day. The time period from the beginning hints of subtle oddities in their behavior and cognition, through their diagnosis and until their deaths was a decade. I worked full time as an elementary teacher during their illness and had always read to solve problems. Therefore, I sought any authors who would share their personal experiences with me. These stories sustained me. They saved me. They allowed me to know I was not alone. From that experience grew my own memoir, Alzheimer’s Daughter.
Susan Landeis dealt with rejection and jealousy from her own mom as she was a little girl and through her teenage years. What does one do when an estranged parent is diagnosed with dementia and needs care? It is a rare individual who reacts with the kindness and forgiveness of Landeis. Because of that generosity and love, or perhaps because her mother forgot the meanness and rejection she inflicted on her daughter in years past, Susan and her mom grew a beautiful relationship during those caregiving years, giving them both comfort in the end.
Susan always knew her relationship with her mother was different from that of other mothers and daughters. As a young girl, she struggled to cope with her mother's unpredictable behavior, rejection, and abandonment. At the age of sixteen, she left home and put it all behind her. Years later, her mother was diagnosed with a devastating illness, and Susan was suddenly faced with the difficult decision to care for both of her parents. In this inspiring, soul-searching memoir, Susan tells the story of a troubled childhood, her struggles as an adult, and her determination to find peace with her mother…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Ice Cream with Grandpa is about the love between a child and his Grandpa.
The child tells the story beginning with the first time his Grandpa gave him ice cream. Their love of ice cream bonds them, but they also enjoy gardening, and walks in the park. When Grandpa moves to an apartment, it took some adjustment. What helped was the ice cream parlor nearby. Grandpa eventually goes into a memory care home.
The child fears Grandpa won’t remember him. His mom explains that Grandpa is still Grandpa. They can still enjoy spending time together. On Grandpa’s last day in hospice, they eat ice cream. Grandpa passes, but the child continues to remember their love each time he eats ice cream.
This story moved me so much that I cried. I love that this book includes a Guide for Parents and Caregivers: Tips for Talking with Children about Dementia, Hospice,…
After his beloved grandpa's health declines and he receives a diagnosis of dementia, a grandson must navigate the changes in their relationship. Through it all, he learns that Grandpa is still Grandpa, and their bond deepens and sweetens through a shared love of ice cream.
Ice Cream with Grandpa is a loving, tender picture book that gently explores the topics of dementia, aging, and loss. Written from a child's point of view, it chronicles the changes in their relationship as his grandpa moves to assisted living, then memory care, and eventually hospice.
The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.
This book is also from a boy’s vantage point, and with a twist, dementia that is a result of too many concussions in the game of football. When Marcus moves to a new town, he befriends Charlie, an ex-NFL’er who mistakenly believes Marcus is a college buddy. Lots of themes come together in this story; family secrecy, a desire to fit in, and even the line between right and wrong depending on the motivation. This book doesn’t shy away from tough topics, including the idea that some people, if given the choice, would choose to die rather than live with the disease.
1
author picked
Pop
as one of their favorite books, and they share
why you should read it.
This book is for kids age
12,
13,
14, and
15.
What is this book about?
Pop delivers suspense, humor, sports action, and a compelling look at the damage those "pop"s in football can cause
Gordon Korman's books appeal to a wide range of kids and adults and can pull in even reluctant readers. Share Pop in your home or classroom; sports fans in particular won't be able to put it down.
When Marcus moves to a new town in the dead of summer, he doesn't know a soul. While practicing football for impending tryouts, he strikes up a friendship with a man named Charlie, the best football player Marcus has ever seen. He can't believe…
During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you.
The 36-Hour Day is a comprehensive guide for caregivers that is often recommended by physicians to the families caring for a loved one with any cause of dementia symptoms or cognitive decline. I found the information provided very practical on the medical, legal, financial, and emotional aspects of caring for an individual presenting any level of dementia symptoms.
The clinical insights provided were very helpful, and the information for the caregiver throughout on the value of accessing outside help is such an important reminder for them to not try and navigate this dementia care journey alone!
Combining practical advice with specific examples on how to cope with the challenges associated with caring for a loved one with dementia symptoms make this an excellent guide for the family caregiver.
Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on * devices to make life simpler and safer…
Family history has always fascinated me. I didn’t want mine to be buried with my loved ones. So, out of curiosity, I asked relatives lots of questions. If unsatisfied, I sought answers elsewhere. I traveled as far as Celle San Vito, Italy, where my grandfather was born, to solve a one-hundred-year-old mystery, and I filmed it for others to enjoy. I’ve memorialized momentous family events in poems, handmade greeting cards, memory books, screenplays, a documentary, and now, in my memoir A Cup of Tea on the Commode. The books on my list are about “family.” I’ve been moved by each, and I hope they move you as well.
Amy’s story is filled with many welcome laughs to break up the many dramatic moments. And I thank her for that.
It’s a beautiful yet tragic love story. After a terminal diagnosis, her husband chose to leave this world with dignity. Amy supports his decision, knowing she’ll spend the rest of her days alone. It raises many questions. “What would I do in this situation?” Could I make the same sacrifice? Could I support my spouse if she chose the same?
I love that we are with them every step of the way. In our country, why can’t we decide how and when to leave this world when faced with a terminal diagnosis? We do this with our pets. I don’t know why we can’t do this for our loved ones instead of draining them of their dignity and the family of their finances.
A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships.
In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'.
Dogs make great supporting characters, adding drama or humor or pathos, and revealing so much about the humans in the story. I discovered this in writing my first novel: The narrator’s dog keeps her grounded when things go wrong and makes it possible for her to keep going through difficult times. For the reader, he provides levity and depth without turning it into a book about a dog. I had a great model – I used my own dog Boris, even appropriating his name. I think of the fictional Boris as real-life Boris’s best self.
I loved everything about this book, from the story arc to Alison McGhee's turn of phrase and use of language.
Her descriptions of people and scenes range from hilarious to tear-inducing, with a side of quirky.
The best thing, though, is the story itself, Clara going back to the place she was never going back to, and dealing not only with her mother's dementia but with the things that made her leave town in the first place.
In this story, the dog is named Dog and he died before the story begins. The blue ceramic urn with his ashes is one of the very few things her mother kept for her – a talisman.
Soul-searching, gripping, and so very well written, this is one of my favorite books of this century.
“[A] poignant meditation on the relationship between a mother and daughter” from the New York Times bestselling author of Shadow Baby (Publishers Weekly).
When Clara Winter left her rural Adirondack town for college, she never looked back. Her mother, Tamar, a fiercely independent but loving woman who raised Clara on her own, all but pushed her out the door, forcing Clara to build a new life for herself, far from her roots, far from her high school boyfriend, far from the life she had always known. Now more than a decade has passed, and Clara, a successful writer, has been…
I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.
This book explains the tight connection between Alzheimer’s disease and education, health, income, and environment, and why the rate of Alzheimer’s disease in the population actually decreased in the decades following the most important societal changes enacted after World War II. Social safety, environmental protections, and income inequality have had far greater impact than any of the pharmacological approaches ever attempted. The authors make the compelling case that brain health is intimately connected to societal health.
Have the social safety nets, environmental protections, and policies to redress wealth and income inequality enacted after World War II contributed to declining rates of dementia today-and how do we improve brain health in the future?
For decades, researchers have chased a pharmaceutical cure for memory loss. But despite the fact that no disease-modifying biotech treatments have emerged, new research suggests that dementia rates have actually declined in the United States and Western Europe over the last decade. Why is this happening? And what does it mean for brain health in the future?
I am a care aide (aka personal support worker) who has happily worked at an extended care facility for more than twenty years, and as such, I have been a compassionate listener to many a family member suffering from the tsunami of feelings involved when coping with aging parents or spouses, so I thought I would be well-positioned and emotionally prepared to cope when it was my turn to face my own mother's deterioration. How wrong I was! Thank goodness for the generous souls who write memoirs. Each of the books that I have chosen was an education and an affirmation to me as I tried to maintain my equilibrium while supporting my mother and my mother-in-law through their final years.
When Jann Arden falls into her role as caretaker to her parents, she uses journaling and social mediato maintain her sanity. "I didn't want to feel alone in a room with Alzheimer's," she writes, and so she brings the reader into her home. Comprised of excerpts from Jann's journals, photographs that make the daily minutiae feel real, and recipes, Jann's beautiful book is a generous and very personal gift. Even those who are not already ardent Jann-fans will feel like her friend when immersed in this memoir. I did my first reading in one sitting, cried, and then read it again.
This edition of the inspirational #1 bestseller draws on a new year of Jann's diaries and her mother's final days.
When beloved singer and songwriter Jann Arden's parents built a house just across the way from her, she thought they would be her refuge from the demands of her career. And for a time that was how it worked. But then her dad fell ill and died, and just days after his funeral, her mom was diagnosed with Alzheimer's.
In Feeding My Mother, Jann shares what it is like for a daughter to become her mother's caregiver--in her own frank…
I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.
Lynn Casteel Harper, currently minister for older adults at The Riverside Church in New York City, has written a compassionate book about contemporary fears of aging, dementia, and death. She shows how these fears produce greater social isolation and suffering for people living with dementia and caring for loved ones, whether in private homes or in care communities. She uses personal experiences to illustrate the way our fears of “vanishing” can be overcome when we learn to connect meaningfully with people with dementia.
An essential book for those coping with Alzheimer's and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (Parul Sehgal, The New York Times).
An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
Leaving Tinkertown is a romp of a memoir that takes the reader behind the scenes of Tinkertown, her father’s colorful roadside attraction in New Mexico. As Ross Ward descends into Alzheimer's, we learn what it was like growing up with this man and how Tanya’s complicated but tender history with him both repels and pulls her back home. Tanya’s writing is gorgeous, and this memoir is both vivid and heartbreaking! It’s a story you won’t soon forget.
When Tanya Ward Goodman came home to New Mexico to visit her dad at the end of 1996, he was fifty-five years old and just beginning to show symptoms of the Alzheimer's disease that would kill him six years later. Early onset dementia is a shock and a challenge to every family, but the Wards were not an ordinary family. Ross Ward was an eccentric artist and collector whose unique museum, Tinkertown, brought visitors from all over the world to the Sandia Mountains outside Albuquerque. In this book Tanya tells Ross's story and her own, sharing the tragedy and the…
